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Re: How is Robert feeling? (fwd)



Wow, sounds complicated.

I guess I've been super lucky.

 > From: Noelle <noelle>
 > Date: Fri, 25 May 2018 08:51:29 -0700 (PDT)
 >
 >  > Date: Fri, 25 May 2018 00:51:58 +0000 (UTC)
 >  > From: Jill White <http://www.gmail.com/~jmschoenfeld50>
 >  > 
 >  >  Thanks so much for the update and the hopeful news that Robt has had the 
 >  >  surgery.  Roger is now having hip replacement with local anesthetic on 
 >  >  June 27 at Sutter Regional Hosp - S Rosa/Windsor border.
 >  > We have learned all about the DEA/Attorney General prescribing laws first 
 >  > hand unfortunately. Roger had to drive back to Sutter Health Regional Med 
 >  > Center on border of Windsor and Hwy101 after hernia surgery in April last 
 >  > year the next day - his surgeon didn't know the current laws and didn't 
 >  > write a paper RX for the opioid to give the discharge RN to give Roger, so 
 >  > our pharmacy a few miles away couldn't fill RX for pain killer from his 
 >  > surgeon who tried to call it in like he use to - soon as Trump and Sessions 
 >  > took over, the prescribing laws got even worse. When I  had picked him up 
 >  > after the same day surgery with local anesthetic (surgeon did have to use 
 >  > general for short time when placing the mesh, against wishes of his old 
 >  > cardiologist who is not in Sutter and had to change to a Sutter cardiologist 
 >  > who did new tests a few months ago to approve Roger for a general to have 
 >  > hip replacement surgery,) so he had to use Norco that he had left over from 
 >  > his fall in Boulder which thank goodness he had never taken or he wouldn't 
 >  > have any pain control. Learned from all the articles online, Pain News 
 >  > Network and other sources like Josh Bloom, doctor of pharmacy who writes for 
 >  > the NSCReport and finally got article in mainline publication recently in 
 >  > Newsweek and learned from Amy's shoulder surgery at Kaiser last Oct, that 
 >  > they only give NSAIDs and Tylenol after surgeries - Amy got severe heart 
 >  > palpitations from NSAID and the general anesthetic wearing off, and went by 
 >  > ambulance back to Kaiser ER to finally get Percocet. ER docs are not allowed 
 >  > to give opioid RXs anymore either except certain circumstances and as you 
 >  > know can only give small amount. Roger and I now wish we would have stayed 
 >  > in Kaiser - their ER docs would never have called me a drug addict like ST 
 >  > Jos./Santa Rosa Memorial Hosp and the triage nurse at Sutter, Santa Rosa. 
 >  > Roger's whole condition started with agonizing pain in his lower back, hip 
 >  > and left upper leg in March.  He called paramedics and took him to Sutter 
 >  > Hosp. ER gave him shot of morphine and told to contact his PCP for 
 >  > painkiller RX. He called the paramedics about midnite and at 5 am ER 
 >  > discharged him and told to pick him up - thank goodness Melanie could do. So 
 >  > he had to wait for appt with PCP and get paper RX for narcotic. 
 >  > Roger and I have long story about his agony for months and not getting from 
 >  > PCP since he wasn't under pain dr or orthopedist care to get opioids from 
 >  > them. Too much for emails.  The suffering that I experienced a year ago to 
 >  > get Tramadol after my PCP had retired in Sutter is relived since Roger 
 >  > became chronic intractable pain pt, and I thought about Robt almost daily, 
 >  > hoping and praying that he could get pain relief. 
 >  > I have copied pages of links on Google/Yahoo for pain patients to show Roger'
 >  > s PCP and friends in chronic pain. I was able to find after being in torture 
 >  > a woman MD in same Sutter Group - she came after my PCP retired and wasn't 
 >  > aware of her there when first needed replacement for him. Ironically both my 
 >  > former male PCP and new woman PCP are Jewish and both extremely empathetic 
 >  > to pain patients and both have worked in hospital setting - he as family 
 >  > practice obstetrician and she was an ER doc before starting in Family 
 >  > Practice. They are willing to stand up to the DEA agent assigned to them. 
 >  > Most MDs in Sutter and other medical groups aren't taking pain patients 
 >  > anymore.
 >  > Which health plan are you two in and which hospital did Robt go to?
 >  > Roger was given Neurontin/Gabapentin by his PCP and he told him that our UHC 
 >  > Optum Pharmacy was taking him off of Norco to non opioid which I know is 
 >  > always gabapentin, which I had been given as an antidepressant after I got 
 >  > lapband but before the whole GERD problem started.
 >  > Roger said when first took, really helped him sleep and thought reduced pain 
 >  > but after a few days doesn't think it does much. I know that the SSRIs have 
 >  > sedating effect when first take and lessen appetite and lose a few lbs but 
 >  > after either weeks or months, they actually interfere with sleep and give 
 >  > uncontrollable cravings for caffeine and sweet refined carbs, and they take 
 >  > away appetite at breakfast time when take the pill and have sweet caffeine 
 >  > and by dinnertime until go to sleep are extremely hungry and lose control 
 >  > over drinking afternoon or evening coffee drink which keeps awake until very 
 >  > late at night.
 >  > I better close.  Hopefully we can talk on the phone and I will be 
 >  > forwarding the links to many articles online, some of which I am sure you 
 >  > have seen already.  I joined The Pain News Network and give them small 
 >  > amount of financial support - they have a number of Jewish people, mostly 
 >  > women, who represent the kind of pain they experience.  There are also non 
 >  > Jewish people but the Jewish have neurological disorders similar to mine and 
 >  > most have had a surgery or more than one surgery that damaged nerve endings.
 >  > Love, Jill
 >  >  
 >  >     On Thursday, May 24, 2018, 8:34:24 AM PDT, Noelle <http://dummy.us.eu.org/noelleg> wrote:  
 >  >  
 >  >  Hi Jill
 >  > Yesterday Robert had the microdiscectomy. It took longer than they 
 >  > expected, due to it being a large herniation. But he felt good 
 >  > afterwards, we went to the drug store to get percocet and 
 >  > antibiotics and he was able to walk around a bit already.
 >  > Ironic that he was able to get the percocet after the surgery 
 >  > instead of before when he really needed it. You can only get a 7 day 
 >  > supply now, but he's feeling so much better he said he might not 
 >  > need to take one today. But we'll see maybe he might have more pain 
 >  > later.
 >  > Hope you're doing OK
 >  > Noelle
 >  > 

 >  >  > 
 >  >  > Did he sleep at all?
 >  >  > 
 >  > 

 >  > | 
 >  > |  |  |
 >  > 
 >  >  |
 >  > 
 >  >  |
 >  > | 
 >  > |  | 
 >  > BookCrossing - noelle's Bookshelf
 >  > 
 >  >  |
 >  > 
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 >  > 
 >  >   Content-Type: text/html; charset=UTF-8
 >  > Content-Transfer-Encoding: quoted-printable
 >  > 
 >  > ---Executing: foldhtml|html-to-ascii
 >  >  Thanks so much for the update and the hopeful news that Robt has had the 
 >  >  surgery.  Roger is now having hip replacement with local anesthetic on June 
 >  >  27 at Sutter Regional Hosp - S Rosa/Windsor border.
 >  >  We have learned all about the DEA/Attorney General prescribing laws first 
 >  >  hand unfortunately. Roger had to drive back to Sutter Health Regional Med 
 >  >  Center on border of Windsor and Hwy101 after hernia surgery in April last 
 >  >  year the next day - his surgeon didn't know the current laws and didn't 
 >  >  write a paper RX for the opioid to give the discharge RN to give Roger, so 
 >  >  our pharmacy a few miles away couldn't fill RX for pain killer from his 
 >  >  surgeon who tried to call it in like he use to - soon as Trump and Sessions 
 >  >  took over, the prescribing laws got even worse. When I  had picked him up 
 >  >  after the same day surgery with local anesthetic (surgeon did have to use 
 >  >  general for short time when placing the mesh, against wishes of his old 
 >  >  cardiologist who is not in Sutter and had to change to a Sutter 
 >  >  cardiologist who did new tests a few months ago to approve Roger for a 
 >  >  general to have hip replacement surgery,) so he had to use Norco that he 
 >  >  had left over from his fall in Boulder which thank goodness he had never 
 >  >  taken or he wouldn't have any pain control. Learned from all the articles 
 >  >  online, Pain News Network and other sources like Josh Bloom, doctor of 
 >  >  pharmacy who writes for the NSCReport and finally got article in mainline 
 >  >  publication recently in Newsweek and learned from Amy's shoulder surgery at 
 >  >  Kaiser last Oct, that they only give NSAIDs and Tylenol after surgeries - 
 >  >  Amy got severe heart palpitations from NSAID and the general anesthetic 
 >  >  wearing off, and went by ambulance back to Kaiser ER to finally get 
 >  >  Percocet. ER docs are not allowed to give opioid RXs anymore either except 
 >  >  certain circumstances and as you know can only give small amount. Roger and 
 >  >  I now wish we would have stayed in Kaiser - their ER docs would never have 
 >  >  called me a drug addict like ST Jos./Santa Rosa Memorial Hosp and the 
 >  >  triage nurse at Sutter, Santa Rosa. Roger's whole condition started with 
 >  >  agonizing pain in his lower back, hip and left upper leg in March.  He 
 >  >  called paramedics and took him to Sutter Hosp. ER gave him shot of morphine 
 >  >  and told to contact his PCP for painkiller RX. He called the paramedics 
 >  >  about midnite and at 5 am ER discharged him and told to pick him up - thank 
 >  >  goodness Melanie could do. So he had to wait for appt with PCP and get 
 >  >  paper RX for narcotic. 
 >  >  Roger and I have long story about his agony for months and not getting from 
 >  >  PCP since he wasn't under pain dr or orthopedist care to get opioids from 
 >  >  them. Too much for emails.  The suffering that I experienced a year ago to 
 >  >  get Tramadol after my PCP had retired in Sutter is relived since Roger 
 >  >  became chronic intractable pain pt, and I thought about Robt almost daily, 
 >  >  hoping and praying that he could get pain relief. 
 >  >  I have copied pages of links on Google/Yahoo for pain patients to show 
 >  >  Roger's PCP and friends in chronic pain. I was able to find after being in 
 >  >  torture a woman MD in same Sutter Group - she came after my PCP retired and 
 >  >  wasn't aware of her there when first needed replacement for him. Ironically 
 >  >  both my former male PCP and new woman PCP are Jewish and both extremely 
 >  >  empathetic to pain patients and both have worked in hospital setting - he 
 >  >  as family practice obstetrician and she was an ER doc before starting in 
 >  >  Family Practice. They are willing to stand up to the DEA agent assigned to 
 >  >  them. Most MDs in Sutter and other medical groups aren't taking pain 
 >  >  patients anymore.
 >  >  Which health plan are you two in and which hospital did Robt go to?
 >  >  Roger was given Neurontin/Gabapentin by his PCP and he told him that our 
 >  >  UHC Optum Pharmacy was taking him off of Norco to non opioid which I know 
 >  >  is always gabapentin, which I had been given as an antidepressant after I 
 >  >  got lapband but before the whole GERD problem started.
 >  >  Roger said when first took, really helped him sleep and thought reduced 
 >  >  pain but after a few days doesn't think it does much. I know that the SSRIs 
 >  >  have sedating effect when first take and lessen appetite and lose a few lbs 
 >  >  but after either weeks or months, they actually interfere with sleep and 
 >  >  give uncontrollable cravings for caffeine and sweet refined carbs, and they 
 >  >  take away appetite at breakfast time when take the pill and have sweet 
 >  >  caffeine and by dinnertime until go to sleep are extremely hungry and lose 
 >  >  control over drinking afternoon or evening coffee drink which keeps awake 
 >  >  until very late at night.
 >  >  I better close.  Hopefully we can talk on the phone and I will be 
 >  >  forwarding the links to many articles online, some of which I am sure you 
 >  >  have seen already.  I joined The Pain News Network and give them small 
 >  >  amount of financial support - they have a number of Jewish people, mostly 
 >  >  women, who represent the kind of pain they experience.  There are also non 
 >  >  Jewish people but the Jewish have neurological disorders similar to mine 
 >  >  and most have had a surgery or more than one surgery that damaged nerve 
 >  >  endings.
 >  >  Love, Jill
 >  >  On Thursday, May 24, 2018, 8:34:24 AM PDT, Noelle <
 >  >  http://dummy.us.eu.org/noelleg> wrote:
 >  >  Hi Jill
 >  >  Yesterday Robert had the microdiscectomy. It took longer than they
 >  >  expected, due to it being a large herniation. But he felt good
 >  >  afterwards, we went to the drug store to get percocet and
 >  >  antibiotics and he was able to walk around a bit already.
 >  >  Ironic that he was able to get the percocet after the surgery
 >  >  instead of before when he really needed it. You can only get a 7 day
 >  >  supply now, but he's feeling so much better he said he might not
 >  >  need to take one today. But we'll see maybe he might have more pain
 >  >  later.
 >  >  Hope you're doing OK
 >  >  Noelle
 >  >  mailto: http://dummy.us.eu.org/noelleg ,http://dummy.us.eu.org/noelleg,    
 >  >   skype:noelle  my-Oakland-voicemail-number
 >  >  http://www.purl.org/net/noelle ,
 >  >  http://www.purl.org/net/noelle
 >  >   ,       sip: http://dummy.us.eu.org/noelleg ,http://dummy.us.eu.org/noelleg,
 >  >  http://www.bookcrossing.com/mybookshelf/noelle ,
 >  >  http://www.bookcrossing.com/mybookshelf/noelle
 >  >   ,     fax: my-2012-fax-number
 >  >  not  very  well  but  he  feels  a  lot  better 
 >  > 
 >  >  On  Thu,  24  May  2018,  Heather  Howard  wrote:
 >  > 
 >  >   > 
 >  >   >  Did  he  sleep  at  all?
 >  >   > 
 >  > 

 >  >  my-2012-fax-number
 >  > 
 >  >  ,http://www.bookcrossing.com/mybookshelf/noelle,
 >  > 
 >  >  BookCrossing - noelle's Bookshelf
 >  > 
 >  >  ,http://www.bookcrossing.com/mybookshelf/noelle,
 >  > 
 > 




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